Social and managerial aspects of palliative care for children in the Kaliningrad region

Том 7 (2022), № 2-3, с. 218–227

[ SOCIOLOGICAL SCIENCES ]

Article (file: pdf, size: 335 KB, downloads: 83)

Abstract:

The article is devoted to the organization and promotion of palliative care for children. The desire to maintain a comfortable life for those suffering from incurable diseases is receiving an increasing response from the state and health authorities at both the federal and regional levels. At the same time, assistance is provided not only by state health organizations, but also by private ones, relying on the support of various funds. At the same time, there is a lack of special, including sociological, research in this area, which would make it possible to find the most vulnerable places in the organization of palliative care. Indeed, it is often difficult to identify and account for those in need of a special type of medical support, which does not allow providing patients with an adequate standard of living. Based on the results of the conducted sociological research, the authors point out the need to improve management practices in the provision of palliative care.

Keywords:

palliative care; management practices; non-governmental medical institutions; sociological research in health care

Authors:

Vladimir V. Krivosheev
Immanuel Kant Baltic Federal University, Kaliningrad, Russia

Anastasia E. Bazenko
Charity Center “I Believe in Miracle”, Kaliningrad, Russia

For citation:

Krivosheev V. V., Bazenko A. E. (2022). Social and managerial aspects of palliative care for children in the Kaliningrad region. Sotsial’naya kompetentnost’ = Social Competence. Vol. 7. No. 2-3. P. 218-227. (In Russ.)

References

  1. Gamondi C., Larkin P. and Payne S. (2013) Core competencies in palliative care: an EAPC White Paper on palliative care education – part 1. European Journal of Palliative. Care 20(2); 86-91.
  2. Baeva A. A. (2017) Problems of Regional Management in the Healthcare System. Obrazovanie i nauka bez granits: sotsial’no-gumanitarnye nauki = Education and science without borders: social sciences and humanities. No. 6. Р. 30-85. (In Russ.)
  3. Bessonov A. P., SHimanskaya E. V., Bessonova E. A. (2020) Analysis of the volume of inpatient palliative care in the “Irkutsk City Hospital No. 7”. Palliativnaya meditsina i reabilitatsiya = Palliative Medicine and Rehabilitation. No. 2. Р. 47-48. (In Russ.)
  4. Buhvalov S. A., Martusevich A. K. (2015) Medical and social significance and organizational aspects of palliative care in the metropolis. Sotsiologiya meditsiny = Sociology of medicine. 53 р. (In Russ.)
  5. Vasil’ev V. P. (2017) On the material and financial support of health care. Sotsiologicheskie issledovaniya=Sociological Research. No. 3. Р. 130- 154. (In Russ.)
  6. Gubajdullina A. R. (2021) Human ascariasis in the territory of the Russian Federation. The scientific heritage. No. 70. Р. 24-26. (In Russ.)
  7. Integraciya palliativnoj pomoshhi v pediatricheskuyu praktiku: Rukovodstvo VOZ dlya specialistov zdravo-oxraneniya, planiruyushhix i osushhestvlyayushhix medicinskuyu pomoshh`, Moskva, Prakticheskaya medicina, 2020. P. 12-14.
  8. Kolomijchenko M. E., Karaeva O. S. (2017) Analysis of the results of a sociological survey of the population on the attitude towards the provision of palliative care in the Russian Federation. Problemy sotsial’noi gigieny, zdravookhraneniya i istorii meditsiny = Problems of Social Hygiene, Public Health and History of Medicine, Russian Journal. 2017. 34 р. (In Russ.)
  9. Kul’kova V. YU. (2018) Organizational mechanism of interaction between the state and non-profit organizations in the provision of palliative care. Ekonomika i upravlenie = Еconomics and Management: Research and Practice Journal. No. 2 (51). Р. 97-102. (In Russ.)
  10. Liptuga M. E. (2006) Palliative care: a short guide: monograph. St. Petersburg: Art of Russia 192 р. (In Russ.)
  11. Miklyaeva A.V. (2018) Psychology of children’s subculture. Sankt-Peterburg: RGPU im. A. I. Gercena. 228 р. (In Russ.)
  12. Miller E. A. (2019) Socio-medical problems of the development of palliative care in modern Russia. Obshchestvo: sotsiologiya, psikhologiya, pedagogika = Society: sociology, psychology, pedagogy. No. 3. Р. 81-85. (In Russ.)
  13. Palliativnaya pomoshh` vzrosly`m i detyam: organizaciya i professional`noe obuchenie. Sbornik dokumentov VOZ i EAPP. M.: R.Valent, 2014.180 p.
  14. Romanova T. F., Andreeva O. V., Bogoslavceva L. V., Otrishko M. O. (2014) The financial aspect of the development of the Russian healthcare system in the context of budgetary reforms. Rostov-na-Don: RGEU “RINH”. 308 р. (In Russ.)
  15. Tvajkross R. D. (1992) Introduction to palliative care. Sobell Pablikejshn. 26 р. (In Russ.)
  16. Tishchenko T. A. (2015) Administrative regulation of the healthcare system of the Russian Federation. Ekonomika i upravlenie: nauchno-prakticheskii zhurnal = Economics and Management (Ufa). No. 5 (127). Р. 16-19. (In Russ.)
  17. Tkachenko A. E., Kushnareva I. V. (2019) Characteristics of the family situation and socio-psychological characteristics of patients of the St. Petersburg Children’s Hospice. Psikhologiya cheloveka v obrazovanii = Human psychology in education. Vol. 1. No. 1. Р. 72-81. (In Russ.)
  18. Fadeeva E. V. (2019) Palliative care in Russia: status and problems. Sotsiologicheskaya nauka i sotsial’naya praktika = Sociologicheskaja Nauka I Social’naia Praktika. 2019. No. 3. Р. 109-119. (In Russ.)
  19. Filippchenkova S. I. (2022) Communication technologies in oncological practice: vectors of personalized medicine. Ekonomicheskie i sotsial’no-gumanitarnye issledovaniya = Economic and social-humanitarian researches. No. 2 (34). Р. 178-185. (In Russ.)
  20. SHCHepin V. O., Tel’nova E. A. Karpova O. B. Proklova T. N. (2018) Palliative care: history, current state, prospects. Byulleten’ Natsional’nogo nauchno-issledovatel’skogo instituta obshchestvennogo zdorov’ya imeni N. A. Semashko = Bulletin of the N. A. Semashko National Research Institute of Public Health. Р. 98-111. (In Russ.)
  21. Ertel’ L. A. (2020) Palliative Care: Regional Aspect. Saratovskii nauchno-meditsinskii zhurnal = Saratov Journal of Medical Scientific Research. No. 16 (2). Р. 515-520. (In Russ.)
  22. YAcyshin S. M., Miklyaeva A.V. (2016) Spiritual support for families faced with an incurable disease of a child. SPb.: Printing house of Mikhail Fursov, 96 р. (In Russ.)